International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a coordinated effort from individuals and Ataxia organizations around the world to help shed light on this rare disease.
Not many people have heard of the disease that afflicts only 10,000 in the UK. It is a rare condition and one that has prevented me enjoying the hobby of metal detecting. International Ataxia Awareness Day (IAAD) is on September 25th of each year. It is a co-ordinated effort from individuals and Ataxia organisations around the world to help shed light on this rare disease. I carry a card with me that clearly explains the symptoms. You may have seen it before.
Young John is a Traffic Cop. When I asked him his reaction to inviting a seemingly drunken man to ‘step out of the car, what his reaction would be. In essence he said that he wouldn’t jump to conclusions for the guy might have Ataxia, just like his Dad. Good one, son!
I have been diagnosed with hereditary ataxia . . . where symptoms develop slowly over many years and are caused by faulty genes that a person inherits from their parents. So that’s why Johnny (my father) was so clumsy. Or is it idiopathic late-onset cerebellar ataxia – where the brain is progressively damaged over time for reasons that are unclear. In medical speak the word IDIOPATHIC used by doctors and specialists simply means, ‘we do not know what has caused this! In fact ANY disease that is of uncertain or of unknown origin may be termed ‘idiopathic’.
So, that’s it. I also have cancer, but that’s a another story. If you’d like to know more about the disease ATAXIA, check it out HERE. In the meantime, thank for reading this far. Believe me when I say that I try hard NOT to be a miserable old git! See you next time.